Now in it's 15th year, the Sydney Chocolate Ball has raised over $14.5 million to fund cutting-edge research and innovations for FSHD. 

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Facioscapulohumeral Muscular Dystrophy (FSHD) is one of the most common forms of Muscular Dystrophy affecting adults and children. FSHD is often referred to as a slow death disease, as muscles deteriorate rapidly, patients straggle to walk, talk, blink, smile, or even eat. It is a genetic disease with no boundaries.

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This year, we’re focused on expanding access to clinical trials and therapies to include children — unlocking treatments and hope for our youngest warriors.

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With no Government support, FSHD Global Research Foundation is Australia’s Peak Body for FSHD, funding medical and patient advocacy and medical research to fast track therapies and a cure.

 

We are "Giving Life to Muscles."