Purchase a Passport Balloon
Passport to a Cure
When you gift someone a Clinical Trial Passport Balloon, you are giving them certainty through a better diagnosis and hope for a cure. Their passport is a prerequisite for clinical trials or for treatments and even a cure when it becomes available in Australia.
We will share with you the impact of your gift and let you know when and where in Australia someone has benefited from your support.
With your support and the expertise FSHD Global Research Foundation can provide, we can give children, individuals and whole families the certainty of a formal diagnosis and the tools they need to take advantage of clinical trials and eventually treatments and cures when they become available.
Few who believe they may have FSHD possess the resources to navigate the complex process of receiving a formal diagnosis and becoming clinical trial ready.
Without your support, it would cost each patient $6,000 for the required testing alone.
Not only do patients receive free testing through FSHD Global, as a bonus, when people complete all the required information in the passport registry, they get a free 3D full body Springbok MRI scan. This invaluable tool helps them understand how their muscles are functioning and guides physiotherapy and exercise that can help them right now as they are waiting for a treatment.
Clinical trials have arrived in Australia and we need as many patients as possible to be trial ready.
At the 15th Annual Sydney Chocolate Ball, our goal was to sell as many clinical trial passport balloons as possible, to give as many Australians as possible the chance at a cure.
When you purchase a balloon, we can tell a patient on our registry that they have been sponsored. We will share updates with you, so you know the money you have donated made their passport possible.
Thank you.